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santa’s little hackers…

Santa’s Little Hackers {http://www.santaslittlehackers.com/} is a seasonal toy drive to adapt toys. They make simple modifications to the electronics of toys and give them away.

These adaptations make the toys accessible to individuals with disabilities so they can play independently.

Santa’s Little Hackers is an annual event put on by MaxMods. MaxMods is a 501(c)3 not for profit corporation chartered to ‘make the world accessible for all’ by identifying adaptations and modifications to make the world work for individuals living with disabilities.

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This is US… (a blog post in a mom’s own words)…{littleton family photography}

This is a very special blog post.  WELL worth your time to read.  This is a story of survival.  And love.  And bravery.   A REALLY beautiful story.  About a LOVELY  Colorado family and the light that surrounds them.

 

The past 20 months have gone by quickly. We thought we would be in a different place with our life, with our family of four. Today we have a five year old girl named Lily and a 20 month old son named Everett. The name Everett means hardy and brave. That he is. Everett joined our family through a complicated course of events that could have ended in a few different ways. He is here with us today because of medical intervention. He is here because I trusted my gut and listened to that little voice. He is here today because he fought to survive. He is a fighter. He is a warrior. He has had so many pokes and scars remain on his hands, feet and legs. Everett’s birth was a medical decision to save my life and his. His entry into life was not how we planned.  He was born at 27 week gestation (a normal pregnancy, of course is 40). He had a placenta and cord complication that caused severe growth restriction for him. I had multiple complications that could lead to stroke and death. We weren’t ready for him. We mourned it all and I still do from time to time, it’s getting better with time. I can enter that place at any moment on rough days. I feel sad I didn’t feel him grow in my belly. I barely looked pregnant. I lay in a hospital bed with women giving birth next to me to full term healthy babies while I spent weeks in the hospital. I could hear them. I ached.  My body could not maintain this pregnancy. The decision to end it was calculated, essentially a risk ratio.

We survived and here is a bit about our journey.

Everett was born in March 2015 and weighed 1 lb and 8 oz. He was 11 inches long and the size of a 24 weeker. He was beyond fragile. Tim, my always optimistic husband cut the umbilical cord with scissors that were bigger than Everett. The operating room had at least 20 people there. I was happy. I had a new baby. I was terrified. I had a 27 week old baby would was intubated and placed on a vent immediately. He was given drugs to help his lungs. I had more complications from the birth afterwards and eventually I went home, but both he and I were sick.  Everett called the NICU home for 140 days. One hundred and forty days. That’s a long time. It SUCH a long time in a baby’s life. Our life stopped and we were in survival mode. Everett was 6 weeks post my due date when he came home. He came home on oxygen with a monitor and could literally go two minutes without oxygen before he was saturating in the 60’s. He would be blue. The monitor and oxygen gave him life. He was not easily portable, but he was home. He was home with our family and he was alive. We lived the next 11 months with full time oxygen. Day and night. Night and day. A baby attached to a cord, the cord that kept him alive. It seems simple and in all reality compared to other things, it is. It is simple to maintain. It is however, very restricting. We kept him home except for doctor appointments for months. He was at an incredibly high risk for lung complications and we didn’t want another hospital stay. We were isolated. I returned to work after having him at home for only 6 weeks. I felt robbed of that time to enjoy my baby. Those 6 weeks were filled with specialist’s appointments. I felt like I barely knew how to do it all even though I did it every day in the NICU. I had amazing teachers of nurses and doctors, people whogot me through the darkest moments in my life. We had a new normal now. Our normal has peacefully settled in with us. We eliminated oxygen needs in June 2016 while he was awake andnight time dependency in November 2016. They have left all the equipment for illness, should that occur. It’s a shadow in our home. It haunts us a little in the corner of the room. We still check him religiously with the pulse oximeter.

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a golden morning…{littleton family photography}

this family has trusted me to capture their family connection quite a few times. and each time i am with them i feel so comfortable –like part of the family. their smiles and laughter are so genuine and raw and no posing was required. we enjoyed a lovely morning together while the leaves were proudly displaying their glittery golden hue.  my favorite time of the day and the year.  and other than a hot cup of coffee, photography is my favorite way to start the day.

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wide open spaces…{littleton family photography}

i really love working with this family. it’s been an honor to be their official family photographer over the years (i think we started working together in 2008) and i’ve watched the kids grow and change so much.

being the artist behind the camera is not a silent role. i get to capture the simple and sweet moments of love and connection that will be cherished for generations. i applaud you guys in many ways–you value professional photography year after year and hang large pieces of art all over your lovely home: canvases, metal prints, standouts. your home is filled with moment of togetherness forever preserved. and it’s very humbling that year after year you choose me to be your photographer. a walk in your home to see all of the work we’ve created over the years is so humbling and lovely.

this year’s session was a fun and different location and i just love the look we achieved: natural and open while celebrating the lovely view of the front range all within your neighborhood. perfection.

thanks for allowing me into your lives. it’s never work for me to be around all of you. you’ve given me and my cameras a true voice over the years. and i thank you for that.

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